heart defect Archives | irish monarchy

04Apr202206Apr2022

Number One Birth Defect: Congenital Heart Defect

Tiffany Heart Mom, MEDICINE, MOM, Nursing Decoded CHD, congenital heart defect, heart defect 28 Comments

That title may sound shocking. The truth is that nearly 1 in 100 babies born each day have a congenital heart defect (CHD). Some go unnoticed. Others become apparently within a few days or month of birth. Then there are those that (thankfully) are noticed before birth and require surgery within days of arriving in the world. This week, February 7th – 14th, we are going to highlight on our social media pages areas of all things CHD, but today want to share with your a bit of our heart journey.

27May201927May2019

Camp Odayin Review: Summer Camp for Children with Heart Disease

Tiffany CHD, Heart Mom, MOM camp odayin, congenital heart defect, heart defect 37 Comments

With summer fast approaching, we started to take a peek at the plans for the summer. College visits? Check. Swim team? Check. Driver’s Ed? Check. Hockey Camp? Check. Band Camp? Check. Just when I thought I was done with our list, Owen yells “DON’T FORGET ABOUT HEART CAMP!!!!”. Needless to say – he is excited to attend Camp Odayin for a third summer.

14Feb201801Mar2018

My Heart Mom Journey – my son’s CHD History

Tiffany CHD, Heart Mom, MEDICINE, MOM CHD, congenital heart defect, heart defect, heart mom, heart warrior, shones complex 1 Comment

First, do you know what CHD stands for? I know I didn’t 10 years ago. Yet over 40,000 infants are born each year with a Congential Heart Defect and still the awareness isn’t where it should be. When you are at your twenty week ultrasound you are usually hoping for either a boy or a girl. I know I was on “team girl” (hey, I had two boys at home already) but deep down every mother is truly hoping for healthy. At the end of the ultrasound I was 0-2. While unaware at the time, I was starting my journey as a “heart mom”. Read more →